A Note From the Road

Hi, Nate is Great fans!  It’s our family reporting from Disney World where we kicked off an early celebration for Nater Tater’s fourth birthday!  Speaking of his birthday, it’s not too late to participate in Nate’s Birthday Wish - we’ll be giving the gift cards to Ms. Susie, Nate’s lead therapist, and Ms. Mollie, Nate’s speech-language pathologist, this Monday when Nate turns FOUR! :)

We will give a full report of our Disney trip when we return, as some pretty magical things have happened here.  But for now, I leave you with these photos of Nate eating his way through the Parks — and boy!  Does Nate ever love to eat!

First Dole Whip of the season!

First Dole Whip of the season – at Aloha Isle in the Magic Kingdom.

Nate stole Chad’s Oreo gelato — at Tortuga Tavern in Adventureland.

Checking out his roule au fromage (cheese roll — with garlic!) – in Paris at Epcot.

Me, Nate, and Funnel Cake – in (where else!?!) America at Epcot.

 

 

Art Therapy Genius

First off, I want to share how extremely overwhelmed we are at the participation and generosity of Nate’s fans in his Birthday Wish!  I truly thought we would receive $100, which would have knocked Ms. Susie’s socks off, but we have received more than $400 so far!  Your generosity is so great that we’ve decided to give part of the money to Ms. Mollie, Nate’s amazing speech teacher, who helps kids of all abilities with speech delays.  If you would like to participate in Nate’s Birthday Wish, there’s still time – we’ll be giving the Amazon gift cards to Ms. Susie on Nate’s birthday, Tuesday, May 20!  Now, onto today’s episode of As Nater Tater Turns….

Nate has always had a love for art of all media — paint, clay, sculpting, you name it, he wants to get his hands on it.  The love has carried over to the school setting; Ms. Susie reports that Nate is one of the most enthusiastic in the class when an art project is on the roster for the day.  Many of the art projects have goals greater than artistic expression like exercising fine and/or gross motor skills, planning/sorting, etc.  Every week, Nate’s folder is brimming with art projects that he’s completed or workbook sheets that helped him practice drawing lines or snipping with scissors.  Chad and I always review each piece of paper with Nate and praise him for a job well done but, since we aren’t the classroom, we don’t really know how much Nate did himself and how much assistance was provided by a therapist.

Flower

Two days ago, this came home in Nate’s folder.  Nice, right?  We were impressed with how close each thing came to fitting within the allotted space.  In fact, a little too impressed.  I mean, he’s three.  Someone must have helped Nate.  That day, Nate’s journal didn’t make it in his backpack so Susie emailed me at night to say there were two videos on Nate’s iPad and she wrote a little explanation about them.  One of the videos was of Nate assembling the above artwork.  After Nate went to bed, Chad and I sat down to watch the video.  In short, we were in awe.

 

To many of you who have interacted with neurotypical kids, this video will be nothing special but, for us, it represents things we’ve never seen Nate accomplish before.  First off, Nate’s sitting at a table, attending to an activity in a very appropriate way–in the way you wish every child would attend to a task.  Nate is so careful and thoughtful with the selection of each paper piece, the use of the glue stick, and the placement of each item.  Incredibly thoughtful.  And it’s a really long task (the video is more than three minutes long), which requires him to sustain concentration and focus.  Then he realizes the task isn’t done until he puts the cap back on the glue stick, so he patiently waits for Ms. Susie, who’s filming the video, to realize this, which she does, and he fully completes his assignment.

I’m pretty sure I can hear Nate’s Birth to Three therapists (all fans of Nater Tater’s blog, of course!) cheering at this film because it’s jaw dropping.  And we couldn’t be prouder because it’s such a clear demonstration of how Nate is thriving in school and taking to new things well.  Granted, this is Nate’s performance after being a full year in Ms. Susie’s room; I’m sure it wasn’t this graceful at the start of his time there.  However, it shows how far Nate has come in a relatively short amount of time — and now we plan to add mosaic-shaped paper and a glue stick to our restaurant bag to entertain Nate as we wait!

A Birthday Wish

Nate is 4!

On May 20, in just a few short weeks, our Nater Tater is going to be four.  FOUR!  We are astonished at how quickly time has passed yet increasingly proud of all the things our sweet boy is learning and accomplishing every day.  Though he might not be meeting the milestones compiled on the all-mighty milestone list, Nate is forging his own path with mastery of new and amazing things.  Can he spell his name?  You bet!  Can he jump in place and forward? Yesserie!  Can he point to what he needs? YES, HE CAN! And can he kiss you on the lips when asked?  Proud to say yes to that one!  In short, our son is brilliant.  And though many people tell us that it’s due to good parenting (we feel like we’re floundering every day, folks – it’s all a front!), we can tell you that we would be nothing if not for Nate’s amazing therapists, which entered his life when he was eighteen months old.

Brilliant Women

It is hard to believe that, last year at this time, Nate had yet to start public school. He had begun to transition into Ms. Susie’s room, all the while working very hard with the beautiful women above (Ms. Marilyn is missing!), who helped get him ready to beginpre-school.  We were nervous about how Nate would accept his new environment and new therapists/teachers but it turns out we had nothing to worry about.

In Ms. Susie’s room, Nate has blossomed and thrived.  With the help of many teachers, including Ms. Mechelle, Ms. Sandy, and Ms. Julianne, Nate loves school.  He walks to his classroom each day, getting more and more excited as we get closer to the door.  When we arrive, he greets them all with hugs (though sometimes it’s a wrestle to get one teacher to give him up to the other teacher for a snuggle).  He unzips his jacket, hangs it up, puts his lunch box in his cubby, unpacks his backpack, says “see ya!” to me, and sits at the table to start his morning activities.  Along with Ms. Mollie, his speech therapist, and Ms. Jen, his school-based occupational therapist, at age three Nate works (and I do mean works) thirty hours a week with these women–and every opportunity is taken to learn, even during meals.  They have advanced my son’s social skills and individual learning goals all while managing three other boys and two girls who are autistic.  I often struggle to manage one child on the spectrum.  They manage six daily–with grace and style.  And they manage to accomplish a ridiculous amount with each and every one of these kids.

In short, these women do God’s work.  And they do all of this within the budgetary constraints of the public education system, which cannot recognize the expense of materials and resources our kids need.  For these children, learning is done through engagement–magnetic engagement with toys or food or art.  And engagement fades so new items must be introduced to keep them compelled to learn and grow.  And Nate’s teachers often buy things to engage our children out of their own pockets.  So, we are asking Nate’s greatest fans for a gift in honor of Nate’s fourth birthday–a $4 gift card to Amazon.com, which we will gather and give to Ms. Susie to use as she best sees fit for our kids.

Why $4?  Well, first because Nate’s turning four.  Second, it’s a reasonable amount–most of us spend that daily on a cup of coffee or a snack at a shop.  And third, because small gifts in large amounts can make a really big difference.  And why Amazon.com gift cards?  Well, some of you loyal Nate fans are friends and family–but we have been blessed to have gathered a following of Nate fans who we have never met.  While we trust that Nate’s fans are all awesome people (you are!), there are some looney toons out there and we don’t want to compromise our safety or Nate’s by revealing our last name, home address, or Nate’s school name.  So that you know we actually relayed the gift cards from our e-mail account to Ms. Susie, we’ll post a picture of her joy and rapture when she receives them!

If you would like to participate in Nate’s birthday wish, click here to be taken to the Amazon.com electronic gift card page.  Under Amount, choose “Set My Own” and enter $4 (or more, if you’re so inclined!).  The Recipient Email is nateisgreatblog@gmail.com.  Then click purchase and it’s on its way!

Happy Nate

In the past few weeks, Nate has learned a new sign–Thank You (though he does the “thank” part and forgets to throw it to “you.”)–and he also says it!  Ok, it’s an approximation and it comes out as “ah boom!” but it’s pretty awesome.  So, in advance for your generosity, Nate signs and says thank you — and we do, too!

P.S. I have discovered that the gift cards sent to me come through Amazon.com – so there’s no way to email you all back to thank you for your generosity!  We’re doing thank you shout outs on Nate’s Facebook page – so make sure to fan him to hear us cheer for you!  

Daily Tales

Once a kid starts having a life outside of your home through day care, pre-school, or school, I think it’s pretty normal to ask your kid how their day was.  Did you do something fun?  Did you learn something new? How was music class?  With Nate, I can ask these questions all I want but, with him being nonverbal, I don’t get a response.  That leaves a huge void in what I know and what he can share.  Enter The Journal.The JournalNearly one year into Nate’s first year in pre-school, we’re on Volume 3 of The Journal, with Volume 2 (pictured above) having gone down in spectacular flames when Nate accidentally spilled an entire cup of water on the notebook.  (It dried.  It’s being flattened by my dictionary.  It’s all good!)  Nate’s teacher, Ms. Mechelle, graciously writes his name on each cover in a fun font and Nate’s teachers and I write back and forth to each other every day to share news about Nate in the home and school environment.  Because I only see certain therapists when I drop Nate off in the morning and the drop-off is quick, my notes are usually about how Nate slept (through the night and well rested, up from 1am – 3am and exhausted), any wins on the potty, new words or amazing feats that Naate accomplished, and/or any behavioral issues we may be having.  Three of his teachers–Ms. Susie (lead therapist), Ms. Mollie (speech therapist), and Ms. Jen (occupational therapist)–all write notes back about what he accomplished that day, progress made toward goals, wins in the potty, and breakthroughs or downfalls. I tend to read the journal as soon as Nate and I get in the car so that I can talk about his day with him as we drive to run errands.  But sometimes, Nate’s therapists do something extra special like this:

Ducklings!

I mean, come on!  What kid wouldn’t immediately see their parent and say, “I SAW DUCKS TODAY! AND I COULD TOUCH THE DUCKS! AND THEY LIVE IN MS. DAWN’S ROOM!  JUST LIVE THERE! I SAW A DUCK!!!” So when I saw this printout in Nate’s folder, I made a big deal out of it.  Clearly in the pictures, Nate was taken aback by the animals (he has a hard time around most animals, as they’re unpredictable in behavior) so I asked instead if Ms. Julianne (pictured – one of his most favorite therapists!) took him to meet some ducks.  I asked if they made noise or waddled and if he and his friends touched the duck.  Clearly, Nate doesn’t respond but he does cheer sometimes with a “YEA!” and I strongly suspect that there are answers to my questions scrolling through his head.  When Chad got home, we took the duck picture off the fridge and Nate showed it to Dad.  Then Dad made a big deal about ducks living in Ms. Dawn’s room, too.

I think it’s pretty rad (yeah, I said it — but isn’t it the perfect use of the word?) that Nate’s school has such a system that allows us to share in our child’s day. Even though he can’t tell us about it, Nate and I can still have a pretty robust conversation about the fun things he did and learned.  Yup.  Totally rad.

All in the Family

When people meet me and Chad, they often ask how the heck Nate got the blonde hair and blue/green eyes.  I explain that he got those genes from his Tutu (Hawaiian for grandma), my mother, who was blonde with blue/green eyes.  Since Tutu’s no longer living, sometimes people don’t believe us, so we show them this photo as a comparison.

Tutu and Nate

As part of my genealogy hobby, I started looking at our own baby pictures and also came across some striking similarities.  For instance, here’s Chad and Nate, both at two months old.
Chad and Nate 2 Months

The similarity between Chad and Nate continues as both grew older.

Dad and Nate 9 Months

And then there’s me and Nate at eighteen months old.  (I was a blondie for a while as a tot.  Then it all fell out and came in dark brown.)

Mom and Nate 18 months

As I get the time to scan in more pictures of me, Chad, and other relatives, I plan to keep these comparisons going because Nate really is a good blend of both of our genes.  Not to mention, these photos crack me up….

A Little Help

Behold!  Our placard!

Though the universal disabled symbol is an individual sitting in a wheelchair, it turns out that Nate qualifies to receive the benefits of the special parking spaces. If it had not been for a post on Big Daddy Autism, a great autism blog written by a father of a thirteen-year-old boy who is autistic, I would have never known that Nate’s developmental disability qualifies us for the placard.  As Nate’s growing, the special status is of incredible help to our family.  Nate’s now 35 pounds, which is a lot of weight for this mama to carry.  Through physical and occupational therapy, plus the aid of his ankle braces (or SMO’s), Nate’s become much more steady on his feet and has begun walking from the car and into stores, school, or our house.  Being able to utilize the designated space has helped in many ways.  For example, Nate’s a runner; he’ll wiggle out of our hands and take off.  As he doesn’t respond to his name, it’s especially dangerous when this happens in a parking lot.  Having a spot very close to a store cuts down on the opportunity for Nate to get loose.  Nate also gets frustrated and drops to the ground, refusing to stand up or move.  The shorter walk helps with this, too.

Here in Connecticut, we filled out the application, which is linked to Chad’s license (as Nate’s obviously unable to drive).  Our pediatrician filled out Part B, certifying that Nate qualifies.  We sent it in and, a week later, we had our placard.  In Connecticut, Nate qualifies under “severe limitation in the ability to walk due to an arthritic, neurological, or orthopedic condition” (emphasis is mine).  Big Daddy Autism kindly outlines how individuals with autism may qualify in each of the fifty states, as the definition of disability seems to differ in each one.  Click here to see his awesome blog post, which has links to each state’s DMV disability page.

Walking to the Store

We’ve had the placard for about a month now and it’s definitely made life easier.  It means Nate can practice doing things like walking to the store’s line of grocery carts instead of me trying to park near one, then leave Nate alone in the car while I go and get it (during which he could have a complete meltdown and hurt himself).  We don’t use the placard all the time – if there’s a “close enough” un-designated parking space, we’ll use it instead.  However, if the lot is full and we need to walk years to get into the store, we’ll check to see if a handicapped spot is available first.  Anything to make a moment with Nate a little easier is much appreciated — and this is one thing that certainly does it.

Mastery!

2013.04.03 - Spelling Name

Nate has mastered spelling his first name!  Ms. Susie is quite ingenious in teaching such a skill to my tot.  He got a laminated piece of paper with his name (we opted for Nate instead of Nathan) pre-spelled in four squares at the top of the page.  At the bottom, there were four velcro dots to which Nate could affix the corresponding letters.  When he got used to it, Nate was presented with a new laminated sheet with the “e” missing from the pre-printed portion.  Once he mastered that, the “t” and the “e” were removed and so on.  Finally, on April 3, Nate successfully completed the number of trials needed to master spelling his first name!  Take a look for yourself!

The video features Ms. Susie, Nate’s lead therapist, and I got a little fancy with the graphics because I had a few minutes to myself today! Note: Nate deeply ponders the letter “t,” as it is a wonderful letter.  Also, he signs “more” at the end of the video because he’s asking for his reward treat – popcorn!

Follow

Get every new post delivered to your Inbox.

Join 27 other followers